Name, scope of activity, registered office and legal status
The Association is established under the name of Polish Association of Tourette Syndrome, hereinafter referred to as ‘The Association’.
Republic of Poland is the main country of The Association, with registered office in Warsaw.
The Association reserves the right to found its local branches.
The Associations is governed by the Regulations regarding associations and holds the status of legal entity.
The Association based its activity on voluntary contribution of all its members.
The Association may become a member of another organisation (in Poland and abroad) with a similar scope of activity.
Objectives and means
The Association brings together persons with TS, their families, doctors, nurses, therapists and others engaged with improving health services, professional and social rehabilitation, employment opportunities and living conditions of those affected by this disorder.
The main objective ofthe Association is to improve the living conditions of persons with Tourette Syndrome, including children and young people, with particular attention paid to health services, professional and social rehabilitation, education, recreation, assistance with employment, obtaining qualifications and functioning of their families.
The Association realises its objectives by the following:
Development of support networks for people with TS and their relatives, in order to enable them to:
a. exchange experiences on how to deal with TS in everyday circumstances;
b. organise therapy and a variety of recreational activities
c. educate to a better understanding of the disorder and how to deal with everyday life problems
Integration of steps undertaken by Support Groups, NHS, education and employment authorities aiming at assisting people with TS.
Organisation of initiatives, such as:
a. collecting information regarding TS, how many people are affected by it and what is their situation;
b. training specialists responsible for therapy and rehabilitation of people with TS;
c. educating public, in particular members of educational institutions, including universities, NHS and other public bodies
d. publication and translation of materials dedicated to TS.
e. carrying out research on causes of TS, more efficient ways of treatment for persons with TS and and their social integration.
Collaboration with other Non-Governmental Organisations in Poland and abroad, which share the same objectives, in particular Associations of TS.
Collaboration with governmental bodies on central and local levels, employment agencies, trade unions, media and other public bodies.
Social support, including financial help in order to offer people with TS equal opportunities.
Undertaking other activities necessary to meet the above-mentioned objectives.
Members, their rights and obligations.
Membership categories: Member, Supporting Member, Fellow Member.
A Member can be any citizen of Poland or another country, who declares to work for and on behalf of the Association, by providing declaration accepted by the Board.
The rights of a Member are as follows:
To elect the Board
To participate in all activities conducted by the Association
To make use of publications and other relevant materials dedicated to TS (according to relevant regulations),
To present proposals regarding scopes of the Association
To request from the General Meeting a removal of a member of the Association
The obligations of a Member are as follows:
To participate in achieving the objectives
Commitment to uphold and maintain the standards set out by the Association
Regular payment of membership fee.
Membership ends as a result of:
Resignation letter presented by a Member,
Exclusion of a Member upon a decision made by the Board due to a lack of a Member's activity or their acting against the standards set out by the Association,
Dissolution of the Association.
Supporting Member is any physical or legal entity, who shares the goals of the Association and supports the Association financially and in any other way
Supporting Member has the same rights and obligations as a Member, excluding a right to elect the Board.
Supporting Member shall be exempted from the membership fee.
Membership of a Supporting Member (who is a physical person) shall end due to the reasons presented in article 13.
Membership of a Supporting Member (a legal entity) shall end as a result of a decision made by General Meeting after the consideration of the application presented by Supporting Member or the Board due to inactivity of a Supporting Member or for any other significant reasons.
Fellow Member can be any physical person merited for meeting the objectives of the Association.
Fellowship is awarded by General Meeting upon the proposal of the Board.
Fellow Member shall be exempted from the membership fee.
Fellow Member shall have the same rights as a Member, except passive right to elect the Board.
Governing Bodies of the Association are:
a. The General Meeting,
b. The Board
The Organs of the Associations are:
a. The Audit Committee,
The Board and the Audit Committee is elected every 3 years by the General Meeting in a secret ballot among a list of candidates (unlimited number)
In the Board shall sit the following:
a. persons with TS.
b. relatives of persons with TS.
A member of the Audit Committee shall not belong to the Board and vice versa.
The Audit Committee member:
a. shall not be a member of the Board and shall not be related, in a partnership or in marriage to a member of the Board.
b. shall not have a record of criminal conviction (in particular indictable or fiscal offence);
The Board Members:
b. shall not have a record of criminal conviction (in particular indictable or fiscal offence);
The decisions of governing bodies, the Association's authorities and other branches are madeby a simple majority vote of the members who are present at the meeting open voting, a quorum of at least ½ of the members who are in good standing shall be required. A Member with right to vote can request secret voting.
The General Meeting
The General Meeting of the Association shall be the supreme organ of the Association.
The General Meeting of the Association is consisting of Members, Supporting Members (or their representatives) and Fellow Members, as well as guest members to support with an advice.
The General Meeting shall be convened by the Board upon a request of the Board, Audit Committee or at least 15 members. The General Meeting shall take place no later than 60 days from the date of the request.
The General Meeting shall issue the convening notice, at least 30 days before the date of the General Meeting, specifying the date, time and place of the meeting as well as the matters of the agenda.
The Board has a right to choose another date for the second session, when (if the first session is not attended by sufficient number of members) quorum is not requested.
For the modification of the Articles or dissolution of the Association a second session of the General Meeting shall be required not later than 30 days from the first session.
The General Meeting shall be regularly convened every year
Powers of the General Meeting:
The General Meeting is empowered:
To set out scopes of the Association,
To appoint the Chair, the Board and the Audit Committee
To provoke and replace the Chair, the Audit Committee or their members
To set up new local branches and draft the scope of their activity,
To analyse rapports of the Board and the Audit Committee
To assess applications and requests received from the Board and members of the Association,
To make decision regarding the assets of the Association,
To set out membership fee,
To decide on amendments to the Association' status,
To investigate and consider the appeals against the Board's decisions and other bodies,
To make decision on dissolution of the Association,
To approve the budget and annual balance sheet
To appoint Fellow Members of the Association.
The Board shall consists of 5 to 7 persons, including: the Chair, the Vice-Chair, the Treasurer and other members. During the first session the newly elected members shall form themselves into a body, establish regulations and rules of procedures and present them to the members.
Powers of the Board
The Board is empowered:
To represent the Association,
To exercise the general administration of the Association and all the powers permitted by the articles,
To set out objectives for the year,
To represent the Association at conferences, both in Poland and abroad,
To convene the General Meeting,
To accept new Members and Supporting Members upon submitted declaration,
To exclude members,
To manage the Association’s assets and funds.
To organise publication of the materials, therapy and training sessions and other activities serving the purpose of the Association.
The decisions are made by a simple majority vote of the members, with at least ½ present in its meeting, including the Chair, the Vice-Chair or the Treasurer.
The Board shall meet at least once every three months.
Declaration of will on behalf of the Association shall only be presented with a support of two members of the Boards, including the Chair, the Vice-Chair or the Treasurer.
The Board shall have the right to appoint Advisory Board, Medical Board or other supporting bodies.
If the position of a member of the Board is vacated due to resignation or any other reason, the vacancy shall be filled by another member by decision of the Board made by highest number of obtained votes. Otherwise, the Board shall call upon General Assembly to hold by-election in accordance to the rules outlined in the Article 22, p.3.
Local Branch may be founded by the General Meeting upon the request of 10 members.
Local Branches are set out to comply with the status of the Association and decisions made by the Board.
Governing Bodies of a local branch are:
The General Meeting of a Local Branch
The Board of a Local Branch
The General Meeting of a Local Branch shall be the supreme organ of a local branch of the Association.
The General Meeting of a Local Branch shall call the meeting upon its own initiative, an initiative of the Board of the Association or upon request from 10 members of a local branch of the Association. The convening notice specifying the date and the place shall be sent to the members in accordance to the article 22 and article 23.
The General Meetingof a Local Branch of the Association is empowered:
a. To set out scopes of activity for a local branch,
b. To appoint and remove the Board of a local branch and its Chair,
c. To analyse rapports regarding a local branch's activity.
The Board of a Local Branch consists of 3 to 5 persons, elected at a local branch's General Meeting, according to the rules set out in the Article 18 of Act 2 and 3.
During the first session the newly elected members shall form themselves into a body, establish regulations and rules of procedures and present them to the members and the Board of the Association.
The Board shall be elected every 3 years.
If the position of a member of the Board is vacated due to resignation or any other reason, the vacancy shall be filled by another member by decision of the Board made by highest number of obtained votes. Otherwise, the Board shall call upon the General Meeting to hold by-election.
The administration of a local branch is governed by the Board, with respect to the Association's powers, outlined in Article 24 and Article 26.
The Board of a Local Branch of the Association is empowered:
a. to represent a local branch;
b. to set out objectives for the year
c. to convenethe General Meeting of a local branch.
Local branches are not independent legal entities and shall not have separate finances.
The Audit Committee
The Audit Committee consists of 3 to 5 person, including the Chair and the Vice-Chair.
During the first session the newly elected members shall form themselves into a body, establish regulations and rules of procedures and present them to the members of the Association.
The Audit Committee shall have the power to control the financial management of the Association and draw the relevant report at least once a year for submission through the Board to the General Meeting of the Association.
The Chair of the Audit Committee and other persons authorised by the Chair may participate in the Board's meeting as advisories.
If the position in the Audit Committee is vacated due to resignation or any other reason, the vacancy shall be filled by another member by decision of the remaining term of office of the replaced member by the highest number of obtained votes. Otherwise, the Audit Committee shall call upon General Meeting to hold by-election.
Resources of the Association
The resources of the Association are the following:
income from the Association's assets
publications (and other),
income obtained from the status of Public Benefit Organisation
Shall be prohibited:
a. purchase of goods and services from an entity, to which members of the Association, members of its governing bodies or its employees and their relatives belong, on no other bases than the third parties and for costs higher than market prices;
b. granting loans or collateral for liabilities upon the Association's assets to any of its members, members of governing bodies and employees or persons to whom members, members of governing bodies and employees are married, are in a partnership or in direct or collateral affinity up to the second degree or are related on the account of adoption, guardianship and shall be named as "close relatives";
c. transferring the assets of the Association to its members, members of its governing bodies and employees and their close relatives on no other bases than to the third parties, in particular when the transfer is made with no remuneration or on preferential conditions,
d. using the assets of the Association by its members, members of its governing bodies and employees and their close relatives on no other bases than to the third parties, unless such complies with the status of the Association.
Amendments to the Status of the Associations and dissolution of the Association
The decision for the modification of the Articles and dissolution of the Association shall be made by the General Meeting by 2/3 majority vote of at least ½of the members with voting rights who are present in the meeting
Decision of Dissolution of the Association shall be outlined in the Resolution, containing particulars of the process and indicating the final destination of the Association’s assets.
Die Tourette-Gesellschaft Polen e.V. unterstützt die Tourette-Syndrom Betroffenen und ihre Angehörigen, indem sie eine Plattform für gegenseiteige Kontakte schafft und das Wissen über die Natur der Erkrankung und ihre Behandlungsmethoden zusammenträgt und an die Öffentlichkeit bringt.Für die Umsetzung dieser Ziele betreibt die Gesellschaft Beratungs-, Informations- und verlegerische Tätigkeit . Der Verein arbeitet mit Spezialisten und Institutionen aus dem Bereich der Edukation, des Gesundheitswesens und der Forschung zusammen.
Es gab insgesamt: 192 Stimmenzurück zum Fragebogen
Die Tourette-Gesellschaft Polen e.V. ist als gemeinnütziger Verein anerkannt